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Greater New York
Charcot-Marie-Tooth Support Group

Saturday May 15th, 2010
12:30 pm - 2:30 pm

Dealing with the psychological and emotional challenges of living with CMT

by
David Tannenbaum

David Tannenbaum, LCSW has been a psychotherapist for 28 years in NYC.

Saturday March 20th, 2010
12:30 pm - 2:30 pm

Update: CMTA SGL Conference and new developments in CMT research.
And Discussion: Survival and Quality of live issues with CMT

Moderated by:
Bob Wine

Saturday January 9, 2010

The CMTA Strategy to Accelerate Research (STAR) Initiative.

Dana Schwertfeger
Director of Member Services of the Charcot-Marie-Tooth Association (CMTA)

Dana will discussed this exciting new approach to research undertaken in CMT research.

Saturday November 14, 2009

Podiatric issues and CMT

Dr. Paul Betschart
Specialties: Podiatric Surgery, Podiatric Orthopedics
and Primary Podiatric Medicine

Saturday September 26, 2009

Laughter Yoga Stress Reduction Workshop

This workshop combines laughter exercises (simulated laughter) and yoga which turns into real laughter when practiced in a group.

A fun and therapeutic workshop which can be enjoyed by anyone.
See http://www.grabbagiraffe.com

By:
Francine Shore
Laughter therapist and facilitator and certified laughter leader

Saturday November 9th 2009

Discussion: Why Me? and What Now?

We will discuss how to deal with finding out about having CMT and what we should do about it. Caregivers, relatives and friends are welcome and can give an alternative prospective to the questions.

By: Bob Wine
CMTnyc Facilitator and member

Saturday March 21st 2009

Discussion: Compensating Skills

We will discuss the capability of the mind and body to compensate for function loss. What we can we do to help ourselves or others in compensating?

By: Bob Wine
CMTnyc Facilitator and member

Saturday January 10th 2009

The Physical and Emotional Benefits of Massage Therapy in Clients with Neuromuscular Diseases, including CMT.

Presented by:
Alan Jordan
Massage Therapist specializing in massage therapy for people with neuromuscular diseases.

Saturday November 8th 2008

Prosthetics-Orthotics-Pedorthics

State of the Art –
Research & Development
What They Can Offer CMT.

Presented by:
VERN L. HOUSTON, PhD, CPO
Associate Professor, Dept of Rehabilitation Medicine, New York University School of Medicine Director, Rehabilitation Engineering Research, Department of Veterans Affairs New York Harbor Healthcare System, New York, New York

Saturday September 13, 2008

Laughter Yoga Stress Reduction Workshop

Presentation by:
Francine Shore
Laughter therapist and facilitator and certified laughter leader

Saturday May 10, 2008
Functional Leg Bracing for CMT

Presention by:
Mitchell Warner, CPO
Ortho Rehab Designs

Saturday March 8, 2008
Physical Therapy and CMT
For presentation information click here

Presentation by:
Tina Sweeney
Senior Physical Therapist
The Rusk Institute of Rehabilitation Medicine

January 12, 2008
CMTA: Past, Current and Future
for presentation and photos click here

Presented by:
Pat Dreibelbis and Dana Schwertfeger Charcot-Marie-Tooth Association (CMTA)

Saturday November 10th, 2007

CMT: an Update:
What is going on in research on treatments.

Featuring:
Mary-Lynn Chu, MD

Associate Professor (Clinical) of Neurology at the NYU School of Medicine;
Co-Director of the MDA Clinics at the Hospital for Joint Diseases and the Rusk Institute, NYU; and
Medical Director of the Elly Hammerman Center for the Treatment of Neuromuscular Disorders.

June 10, 2006

Daniel Hess
Group Member and Filmmaker
Phone: (347) 886-7720
E-mail: worldinfovideos@yahoo.com

Presenting:
Diet and exercise from a personal point of view.
-Meditation - how this helps.
-Exercises - When he started, when where and how. He will also discuss some pitfalls and wrong turns as well.
-Food - what, when and monitor-ing intake of food; limits.
-How this affects him.

January 21, 2006

Daniel Geller
Senior Occupational Therapist
The Rusk Institute of Rehabilitation Medicine
400 East 34th St.
New York, NY 10016

Inpatient: (212) 263-6034
Outpatient: (212) 263-6037

Presenting:
Occupational Therapy
The skilled treatment that helps individuals achieve independence in all facets of their lives. It gives people the "skills for the job of living" necessary for independent, productive and satisfying lives.

November 12, 2005

Jonathan T. Deland, M.D.
Chief Foot and Ankle Service
Hospital for Special Surgery
535 East 70th Street
New York, NY 10021
Telephone 212 606-1665

Presenting:
Surgical Treatment of CMT for the Foot and Ankle
This talk describes the eformities, some conservative treatment and surgical treatment when necessary.
Powerpoint Presentation

Update: CMTA SGL Conference and new developments in CMT research. And Discussion: Survival and Quality of live issues with CMT

Moderated by: Bob Wine

Associate Professor (Clinical) of Neurology at the NYU School of Medicine; Co-Director of the MDA Clinics at the Hospital for Joint Diseases and the Rusk Institute, NYU; and Medical Director of the Elly Hammerman Center for the Treatment of Neuromuscular Disorders.

Update: CMTA SGL Conference and new developments in CMT research.
And Discussion: Survival and Quality of live issues with CMT

Moderated by:
Bob Wine

Associate Professor (Clinical) of Neurology at the NYU School of Medicine;
Co-Director of the MDA Clinics at the Hospital for Joint Diseases and the Rusk Institute, NYU; and
Medical Director of the Elly Hammerman Center for the Treatment of Neuromuscular Disorders.